ME Association

Episode Ten - Dr Mark Guthridge

Gary Burgess speaks to Australian medical researcher Dr Mark Guthridge, who himself has lived with ME since 2015. Mark now devotes much of his time to promoting awareness and understanding of ME and is about to begin a new research project which could lead to new diagnostic testing.Show notes:Emerge Australia - https://emerge.org.au/Details of the Emerge Australia symposium - https://emerge.org.au/wp-content/uploads/2019/03/2019-Symposium-Programme.pdfYou can follow Gary Burgess on Twitter @GaryBurgessCI and please use the hashtag #TheMEShow in any social media posts.

Episode Nine - Carol Monaghan MP

Gary Burgess speaks to Carol Monaghan MP, a staunch supporter of people with ME who's arranged a number of Westminster debates - most recently in January this year. Gary spoke to her in the week ME was making the headlines after a psychologist announced he was stopping his ME research because of bullying, and Rod Liddle wrote a comment piece in the Sunday Times mocking people with ME for believing their illness was "real".Carol Monaghan's website: http://www.carol.monaghan.scot/Michael Sharpe's interview on BBC Radio 4 (2 hours 46 mins in): https://www.bbc.co.uk/sounds/play/m0003cthRod Liddle's Sunday Times column: https://www.thetimes.co.uk/article/always-fatigued-yet-they-never-tire-of-claiming-their-malady-really-is-a-virus-d7s7qlvbkYou can follow Gary Burgess on Twitter @GaryBurgessCI and please use the hashtag #TheMEShow in any posts.

Episode Eight - Dr Nina Muirhead

Gary Burgess speaks to Dr Nina Muirhead who, herself, has ME and now campaigns to raise awareness of it among her medical peers. In this conversation she talks about her own experience of understanding ME as both a medic and a patient, and of her work to ensure the new generation of medical students have a better understanding of the illness.Dr Nina Muirhead on MEpedia - https://me-pedia.org/wiki/Nina_MuirheadThe video that inspired this episode - https://www.youtube.com/watch?v=19ehJpZ4g9MFollow Gary on Twitter @GaryBurgessCI

Episode Seven - The Countess of Mar

Gary Burgess speaks to the Countess of Mar, who sits in the House of Lords, and chairs the Forward ME coalition of ME charities. The Countess speaks about her work to unite charities in the face of lobbying from psychological groups as well as the ongoing review of official guidelines for the treatment of ME.The Countess of Mar's parliamentary biography - https://www.parliament.uk/biographies/lords/countess-of-mar/1861Forward ME - http://www.forward-me.org.uk/Follow Gary Burgess on Twitter @GaryBurgessCI

Episode Six - Dr Sarah Myhill

Gary Burgess speaks to Dr Sarah Myhill, a long-time ME campaigner who runs a specialist clinic for people with ME and Chronic Fatigue Syndrome. In this episode she explains, in detail, her understanding and experience of treating people with ME and CFS, as well as her own ongoing battles with the General Medical Council. In this episode she makes allegations about the authors of the Pace trial report, and her fight to get the GMC to look again into those allegations is ongoing.Dr Sarah Myhill's clinic - www.drmyhill.co.ukHer doctors' collective - www.naturalhealthworldwide.comYou can follow Gary Burgess on Twitter @GaryBurgessCI

Episode Five - Sue Pemberton

Gary Burgess speaks to Sue Pemberton, an occupational therapist who runs the Yorkshire Fatigue Clinic. She has a deep understanding of ME through many years of working with people from mild to moderate through to severe forms of the illness.Show notes:Sue's clinic - www.yorkshirefatigueclinic.co.ukFollow Gary Burgess on Twitter @GaryBurgessCI and please use the hashtag #TheMEShow

Episode Four - Dr Nigel Speight

Gary Burgess speaks to Dr Nigel Speight, who has dedicated much of his professional career to supporting those with ME, and particularly fighting the corner of parents and children caught up in child protection cases where parents have been accused of abuse, rather than their child's ME being diagnosed.Show notes:Nigel Speight on MEpedia: https://me-pedia.org/wiki/Nigel_SpeightNigel Speight's own ME handout: http://voicesfromtheshadowsfilm.co.uk/nigel-speight-me-handout/

Episode Three - Caroline Kingdon

Gary Burgess speaks to Caroline Kingdon from the ME CFS Biobank at the Royal Free Hospital in London. Caroline has worked at biobanks in both the United States and Middle East, and now works closely with ME patients who donate samples which are used by researchers around the world.Show notes:The ME CFS Biobank - https://www.facebook.com/mecfsbiobankCaroline Kingdon - https://www.lshtm.ac.uk/aboutus/people/kingdon.caroline

Episode Two - Linda Tannenbaum

Gary Burgess speaks to Linda Tannenbaum of the Open Medicine Foundation in the United States which raises millions of dollars annually to fund ME research.Show notes:Open Medicine Foundation - www.omf.ngo

Episode One - Dr Charles Shepherd

Gary Burgess speaks to Dr Charles Shepherd about the latest developments in ME research at the start of 2019.Show notes:Carol Monaghan MP's House of Commons debate - https://parliamentlive.tv/event/index/d7401af9-0971-4d2c-a875-a9170495bd8bME patient survey - https://brookeshls.co1.qualtrics.com/jfe/form/SV_cwGfVEpqF7CmdTL