ME Association

Series two is coming soon!

Gary Burgess is back to let you know a new series of The ME Show is coming soon. You can subscribe in Apple Podcasts, or listen online at www.meassociation.org.uk/themeshow

Episode Ten

Gary Burgess concludes this first series of The ME Show with highlights from the recent Westminster debate about ME. It was called for by the MP Carol Monaghan, who appeared on The ME Show earlier in the series. Dozens of MPs attended the three-hour-long session. This episode features highlights from most of those who spoke during the debate.
You can watch or listen to the full debate here: https://www.parliamentlive.tv/Event/Index/3d63c39d-18f3-4cd7-8509-c91785dced98
You can find out more about Carol Monaghan MP and her work here: http://www.carol.monaghan.scot/
You can contact Gary Burgess on Twitter @GaryBurgessCI and please use the hashtag #TheMEShow in your messages and comments.

Episode Nine

Gary Burgess speaks to Chantelle Parry who set up an ME friendship group in Gloucestershire, as well as to Rachel Ephgrave who is one of more than 100 members of the group. Chantelle explains how she was inspired to bring together others near her with ME after watching a community screening of the documentary Unrest.
Show notes:
Chantelle's friendship group: https://www.facebook.com/groups/139595413368299/?ref=br_rs
Millions Missing Gloucestershire: https://www.facebook.com/Millions-Missing-Gloucester-2018-1816329311751566/
Greg Crowhurst's book for carers: http://stonebird.co.uk/CARE/index.html
Follow Gary Burgess on Twitter: @GaryBurgessCI and use the hashtag #TheMEShow when getting in touch.
Remember, you'll also find this show on iTunes, Spotify and other podcast platforms - simply search for The ME Show.

Episode Eight

Gary Burgess speaks to Greg Crowhurst, a full time carer to his wife Linda who has severe ME. Greg talks candidly about the realities of being a carer, and of Linda's symptoms. He also shares some of the coping mechanisms they've developed over the years, and about a book he's written to support others in a similar situation.
Show notes:
Greg's website Stonebird: www.stonebird.co.uk
This week's parliamentary debate about ME: https://parliamentlive.tv/event/index/3d63c39d-18f3-4cd7-8509-c91785dced98
Follow Gary Burgess on Twitter: @GaryBurgessCI

Episode Seven

Gary Burgess speaks to Emma Donohoe who was diagnosed with ME at the age of 19. She presented a documentary for BBC Newsbeat called 'ME and me' earlier this year, which told the story of her own experience, as well as a number of others. She also met the family of Merryn Croft who died of ME.
Show notes:
ME and me documentary: https://www.youtube.com/watch?v=XLPCuEdqIWY
Emma Donohoe on Twitter: @EmmaDonohoe3
You can follow Gary Burgess on Twitter @GaryBurgessCI and please use the hashtag #TheMEShow is posting about the podcast

Episode Six

Gary Burgess speaks to Trish Davis who has severe ME. She was first diagnosed and experienced mild ME 28 years ago, but things got progressively worse more than a decade back. Her daughter Hannah also has severe ME. Trish talks about what day to day life is like and the things she's learned about managing her symptoms, in the hope of helping others.
Show notes:
The Science 4 ME forum: www.s4me.info
Fitbit: www.fitbit.com
Follow Gary Burgess on Twitter @GaryBurgessCI and use the hashtag #TheMEShow

Episode Five

Gary Burgess speaks to Michelle and Nigel Henshaw about their Music 4 ME project - an album of music and poetry from people with ME. They've created the album to raise funds to pay for a book about ME, written by Dr Hng, can be distributed to every GP surgery in the UK, and hopefully further afield, to increase awareness and understanding of the illness.
The Music 4 ME website: www.music4me.net
Dr Hng's Friends Facebook page: https://www.facebook.com/groups/drhngsfriends/
Buy the Music 4 ME album: https://www.music4me.net/music
A Not Just Tired blog interview with Michelle and Nigel: http://notjusttired.com/2018/05/25/interview-26-years-living-with-me/
Follow Gary on Twitter @GaryBurgessCI and please use the hashtag #TheMEShow

Episode Four

Gary Burgess speaks to Jane Colby from Tymes Trust, the only charity dedicated to children with ME. Jane explains the work they do to support the estimated 25,000 children in the UK with the illness, as well as some of the traumas both children and their parents face when trying to find the right support both medically and educationally.
Tymes Trust website: www.tymestrust.org
Tymes Trust helpline: 0845 003 9002
You can follow Gary on Twitter @GaryBurgessCI and include the hashtag #TheMEShow to share your feedback

Episode Three

Gary Burgess speaks to Carol Monaghan MP, the Member of Parliament who led the Westminster Hall debate about the discredited Pace trial. She speaks about her campaign to raise awareness and understanding of ME. Gary also reviews some of the coverage of the Millions Missing events.
Show notes:
Millions Missing coverage: https://meaction.smugmug.com/MillionsMissing-2018
Carol Monaghan MP's website: http://www.carol.monaghan.scot/
How to lobby your MP about the Early Day motion: http://www.meassociation.org.uk/2018/05/me-awareness-week-2018-new-early-day-motion-launched-by-carol-monaghan-mp-09-may-2018/
You can follow Gary on Twitter @GaryBurgessCI and please use the hashtag #TheMEShow with your messages.

Episode Two

In this episode, Gary Burgess speaks to the ME Association's medical advisor Dr Charles Shepherd about his own experience of ME, how that diagnosis changed the direction of his medical career, as well as a look at the current situation when it comes to medical research.
Show notes:
BBC ME and me documentary: https://www.youtube.com/watch?v=XLPCuEdqIWY
ME Association library: http://www.meassociation.org.uk/shop/
Millions Missing events: https://millionsmissing.meaction.net/
ME biobank: https://cureme.lshtm.ac.uk/
Carol Monaghan MP's Westminister debate: https://www.youtube.com/watch?v=aglZuPQLw2U
You can follow Gary Burgess on twitter @GaryBurgessCI and please use the hashtag #TheMEShow to share your feedback and messages.